Just received a phone call from Kim with the freshest news from Lee. He talked with Laura(palliative care coordinator) and Evelyn’s feeding tube will be removed today. She will be moved to the 8th floor for the remainder of her care. He stayed with her until she fell asleep. He left to go in searchContinue reading “today’s move”
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Crotchety and morphine
So I finally headed to Eugene under cloudy skies with sun breaks around 11am. The drive was beautiful, fields emerald green under bright bursts of sunshine, 5 eagles, no rain and traffic not to busy. If I had left earlier I probably would have seen her longer than 5 minutes. However today’s nurse Ken hadContinue reading “Crotchety and morphine”
Morning report says…
Huh. Doctors didn’t find anything in the marrow. Lee is not always the best at relaying information so Kim & I will have to inquire with today’s nurse. The feeding tube they inserted yesterday morning must have finally moved into place and she must have received some food. Lee said she looked a degree betterContinue reading “Morning report says…”
Closing the circle
The circle of life for Evelyn is quickly closing. Yesterday she had Lee, Kim, Kirsten, Mike, Shannon, Dave and I, plus Laura with palliative care, there with her while we asked questions concerning her comfort over the next couple of days. It takes about five seconds or more for questions to compute in her brainContinue reading “Closing the circle”
Afternoon meeting today
Yesterday the bone marrow biopsy was taken. Results may still be a few days out. Occupational therapist was in and had Evelyn wash her own face and brush her teeth. Our nurse for the next few days is Mary, one we had on our last trip through ICU back in September. Palliative care will beContinue reading “Afternoon meeting today”
Checking into Hospice
My friend Ella wondered how Lee was holding up. I started writing a reply in the comment section but realized others might not check that area. Lee seemed to accept fairly early on Evelyn’s transition. He told us that he thought this whole surgery thing was a bad idea. Low and behold, he was right!Continue reading “Checking into Hospice”
Bone marrow failure
Today’s stats: platelet count down to 9k. White blood cell level down to 1.4. Her bone marrow is not producing any blood. Mental state is total denial of what’s happening to her body. She is not going out without a fight. Jenny the nurse has been on the receiving end of her attitude shift. TheyContinue reading “Bone marrow failure”
What will today bring
Dave and I will be heading down for a morning visit today. Yesterday, like the day before, she slept through the afternoon. So please visit during morning hours. Had a very good conversation with Kathy out in Connecticut last evening. It’s going to be hard for her to tell Zac know about his grandmothers condition.Continue reading “What will today bring”
Autoimmune hemolytic anemia and other fun stuff
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Sleeping afternoon
Not a lot happened after her morning visits except sleep. Lee went to visit after lunch at 1pm and waited around to see if she would wake up, but no go. Mike, Shannon & Bryant showed up around 3 and she was still sleeping. Dave & I showed up 10-15 min later, still sleeping. KimContinue reading “Sleeping afternoon”